Tuesday, April 16, 2019

April 2019

I can't believe that April was the last full month that we spent with Seth. The month started out pretty well, with hopes that we might actually go home at some point. Seth spent some time unplugged from his IV pole, which was a blessing.

April 1
One of the creations he built from his Lego tub
April 2
April 3 - He was pretending to be a walrus after wipes/sheet change
April 4 - With Frostito (Another burrito pet)
Friday April 5 - Observation Deck at MDA





Ambulance ride - we were joking about stinky things on the way back to TCH

Saturday April 6 - Danielle brought Seth the stuffed turtle from her trip to Mexico
Sunday April 7

Monday April 8

Neena sent some bunny ears

Tuesday April 9
They were designing a Hot Wheels car like another patient that we'd read about
Wednesday April 10
We cut out some Easter Eggs together


Friday April 12
I bought this game for him off of Amazon and he liked it
Listening to a violin player


Seth would pick out a band-aid and then ask me to take a picture of it so he could see what it looked like
Sat Apr 13 - We found out that morning that the sibling restrictions had been lifted after Will arrived. I drove home and picked up Nathaniel and Mimi and we headed back to the hospital for a visit. Everyone was so happy.

Sunday April 14
Amelia drew this -it was a very specific kind of fire truck but I can't remember the name
Monday April 15

Will was at work. This was Seth's first time to ride this tricycle. He was so excited. He threw his hands up in the air and said "This is what I'm talking about!"




Tuesday April 16 - some time off of the pole after photo! You can see a few of his hairs that had grown back.
Thursday April 18
Will was at work and Mimi came to visit us


Another ride on the bike with Kerry
He got these 2 little monkeys as a prize - they were small fingerlings

Friday April 19


Saturday April 21 - visit with Nathaniel and Aunt Hill, day before Easter





Sunday April 21 - Easter
Resurrection Eggs from Mary Kay - very popular with both boys


They fought over these eggs for a bit. They are brothers.
Morning of Monday April 22. Our biopsy time got pushed back to noon. Go figure.
Seth had time for a bike ride while we waited for surgery.
We read books to pass the time.

Monday April 22 - our last ever bone marrow biopsy. Seth was in good spirits.
This is the first time I'd even gotten him in the gown before he was asleep from the anesthesia.
I sent Nathaniel a gift to the house - new shoes for his triathlon
Tuesday April 23 - New Wheelchair



His prize was the superhero Armadillo - not one of his favorites (hence the face)


Wednesday April 24 - Seth's last tricycle ride



Seth had a race with Katie Terry - he is holding up a "1" for coming in 1st. Katie was 2nd.

This is all Seth talked about when we told him that we were going home - having his "tractor macaroni"








Finally home together after 6 months

Thursday April 25
Playing the Cat and the Hat game









Friday April 26 - Everyone asleep on the way home from clinic
Saturday April 27




Sunday May 28



Tuesday April 30

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