January 2019

January was a very difficult month. Getting everything organized for Seth to start photopheresis was very stressful. We were so sad that we were spent Thanksgiving, Christmas and now New Year's at the hospital. The weather was gray and dreary. But we were thankful to have time with Seth.

Jan 2 Ambulance to MDA; 1st photo treatment

He took a nap on the ambulance stretcher in the hallway because clinic was full; I stood there the whole time he was asleep and held his hand.

Jan 3 - recovering from a long first day at MDA

Jan 4

Jan 5 - we celebrated N's birthday at hospital

Nathaniel brought Seth a dino puzzle from DinoWorld

Jan 6

Nathaniel playing with Christmas gifts

Jan 7

He had the bruise from his pheresis catheter for at least  6 weeks

Jan 8 - we got to see the window washers!

Will gave Seth a little haircut to trim up a few of the long hairs that didn't fall out.

Jan 9

Jan 10 - PT in the cube chair

Jan 11 - Robot Jacket

Jan 12

Jan 13

Nathaniel and I took a walk to Rice Village and enjoyed some crepes and waffles

Jan 14

Jan 15

"Meat Sweats!!"

Jan 17

Sat Jan 19

Sunday Jan 20

Will helped Seth to write his name in Seth's new book while I was gone. Seth was so proud!

A late Sunday night dressing change. Seth waited until I was back at the hospital to help him with his dressing change.

Jan 22 - Tuesday at TCH - therapy day before MDA Photophoresis

Jan 23

Jan 24

Nathaniel had endured a hard day at school the previous day, so we pulled him out of school for a special Thursday visit. It lifted everyone's spirits.

Jan 25 - Shawn gave Bacon to Seth. Bacon rode home with Will to get a bath.

 Jan 26

 Putting together Batman/Poison Ivy kit

Jan 27

Jan 28

Tues Jan 29 - resting from photo

Jan 30 - MDA with Slippery the Seal (from Shawn)

Jan 31