December

December was a very difficult month. I honestly don't remember that much about it. From the pictures you can tell that Seth slept a lot because he felt so bad from the GVHD. Lauren Scherer was our fellow for the month and she was wonderful. We were blessed to have so many wonderful people helping us on this terrible journey.

Sat Dec 1

GVHD skin rash. Made his dressing change more painful.

Tuesday December 4 - Making a penguin for OT

Tiffany Tran came by for a visit and brought Seth this dinosaur egg

Friday Dec 7 - Seth was feeling very nauseous and threw up a lot

Dec 8 - Went downstairs to do CT, ultrasounds

Sunday Dec 9

Seth wasn't up for visitors that weekend, but Nathaniel and Mimi were still able to do the Santa Dash

Monday December 10 - Dressing change with Christmas tree on his dressing

Decemer 12 - Seth's liver numbers were increasing and so was his bilirubin. Multiple labs needed each day.

Friday December 14

December 14

Saturday December 15 - Nathaniel shopped at a market at TCH for a gift for himself and Seth

December 15

Sunday December 16

Monday Dec 17

Wed Dec 19 - Trash-o-saur

December 19

December 20 - Making a Christmas craft together

Friday Dec 21

Friday Dec 22

Christmas Eve. Miserable.

Christmas Eve

Chrismas morning - Oliver delivered presents. Seth felt too bad to care.

Nathaniel was excited about the presents

Christmas Day - Seth slept a lot. We watched a Christmas Story

Dec 26 - We spent a lot of time in bed. Seth slept a lot.

Friday Dec 28

Sara with OT came by and Seth finally played with a few of his Christmas presents

December 28

December 29. Scheduling Seth's pheresis catheter surgery with IR.

December 30 - A rare good day. We enjoyed this day before his surgery for pheresis tubes.

Seth and Will finally finished the Lego pizza truck. Dr. Yassin knocked part of the pizza truck off and Seth got very upset. He didn't like the doctors to touch his toys at all.